Total Care Program for Parkinson’s Disease

The Total Care Program for Parkinson’s disease is an initiative of the Peter O’Donnell Jr. Brain Institute to support families facing a diagnosis of a neurodegenerative disorder such as Parkinson’s or a form of Parkinsonism and to provide them with the practical resources and tools they need to live well with the illness.

At the heart of the Total Care Program for Parkinson’s disease is our focus on the whole patient. We believe that in addition to high-quality medical care, families also need information, education, and resources not only to adjust to the demands of the illness but to enhance their quality of life.

With these needs and priorities in mind, our Total Care Program for Parkinson’s disease offers a personalized approach to all of the programming at UT Southwestern's Movement Disorders clinic. Our program includes virtual and live educational events, care navigation, community-building, and other support opportunities.

The need for support and community goes beyond the excellent clinical care our patients receive. Our focus on the whole patient is intended to empower families as well amid the medical challenges their loved one faces.

Who can participate in the Total Care Program for Parkinson’s disease?

• People with a diagnosis of Parkinson’s disease or a form of Parkinsonism
• Care partners, caregivers, friends, and others who support the person with the diagnosis
• Clinical providers who are looking for avenues of supportive care for their patients

If you are interested in participating in the program, please fill out the survey.

You may also email us.

Events Series

The Total Care Program for Parkinson’s disease events series brings informational resources from UT Southwestern experts and area partners to our Parkinson’s patient community. Specialists such as speech-language pathologists, physical and occupational therapists, psychologists, palliative care doctors, movement disorder neurologists, and nutrition specialists deliver up-to-date knowledge that program members can use in their daily lives. Past events delved in to topics such as diet, emotional wellbeing, speech and swallowing, and exercise recommendations.

Patients, family members, and medical professionals are invited to participate in one or all of these virtual and in-person events. Visit the event series page.