Genetics and Hereditary Cancers

Implementation Tools for Screening and Navigation

New Patient Appointment or 214-645-8300

Population-based screening has been proposed as a means of increasing detection of patients with hereditary cancer, in particular patients with Hereditary Breast and Ovarian Cancer syndrome (HBOC) and Lynch syndrome (LS), the two most common hereditary cancer syndromes affecting between 1 in 800 and 1 in 350 people respectively. The literature shows poor detection of HBOC, LS, and other hereditary cancer syndromes in the population and unequal access to genetics services. 

Individuals who are geographically isolated, or come from lower socioeconomic and education backgrounds tend to have reduced access to medical care, including genetic counseling and testing, due to various barriers. Patients from these populations also tend to have higher incidences of late stage cancers and poor outcomes. Patient navigators have been shown to increase access to medical care by identifying and addressing barriers, and improving patient outcomes overall. 

This section includes resources for implementing population genetics screening programs, and patient navigation programs.

For assistance with resources in this section, please contact us at 214-645-2563 or cancergenetics@utsw.edu.

Software Utilization Guides

CancerGeneConnect: CancerGeneConnect is an online platform that increases efficiency and allows clinicians to spend more time addressing their patients’ needs. The software allows for clinical data collection and tracking; generation of pedigrees, clinical documentation and patient resources; patient navigation; and risk assessment using an array of commonly used risk models. Patients can enter clinical history via a patient portal.

CancerGeneConnect User Guide

Progeny Clinical: Progeny is an online platform that allows for increased efficiency in the clinic. The platform allows clinicians to identify high-risk patients using integrated risk assessments, collect clinical history and generate pedigrees, consult notes, and patient letters. Patients are able to enter and access data through a patient portal.

Progeny User Guide

Screening Program Metrics/Calculator

Information will be coming soon.

Navigation Process/Outline

Information will be coming soon.

Last updated June 2020